Firstly, I haven’t updated this blog for a few days because it’s been totally manic!

On thursday, the doctor at 5pm came in and announced that we would be going home!

This came totally out of the blue and after much discussion about giving up Acorn house etc, we decided that we would make the most of this unusual opportunity and get Deryn home – possibly for Christmas if he behaved himself!

On Friday we went to Wayland Academy where they were putting on a massive fundraiser for Deryn and DoEveRYthiNg.

It was superb! They really went to town and there was so much love and suport there, it was brilliant! Even more so, it was fantastic to see Deryn out and about and with his friends after 8 long weeks in hospital.

Lots of people turned out and lots of people donated cakes, we can’t thank you all enough either because if it wasn’t for the donators and the organisers, none of this would have been possible.

There was a fabulous number of raffle tickets bought and there are some lovely prizes – The raffle will be drawn on Thursday – the reason for this will become apparent in a moment.

The vicar was victorious in naming the wonderful dragon cake that was donated, it’s name was Angel.

We had some brilliant volunteers go off into the town and sell cakes for us, they came back with a substantial amount of money and then once we were all finished and packed up – Rob went out in to the town with more raffle tickets and the prizes….he did brilliantly well in town too! He’s a natural fundraiser 

So, we get home on Saturday and before we can get the few cakes back out of the car, Deryn spikes a temperature!

We all know what that means and to be brutally honest, it was no surprise.

He lasted a whole 38 hours out of the hospital!

We had to go to our local as he needed anti-biotics quickly. For those who know us personally know why we won’t be treated at our local hospital but we had to go there none the less because Deryn’s immediate health was at risk.

I won’t go in to details but there was some significant delay in getting him over to Addenbrookes which resulted in us both sleeping in a treatment room where Deryn slept on an examination bed until 0045 hours when they brought a bed in for him.

Thankfully, Deryn is now back in C2 where he is being looked after by a specialist team. His bloods are quite terrible if I’m honest. I have never seen him with 0 White blood cells before so his immune system is momentarily  non existent.

Unfortunately, we gave up Acorn house when Deryn was discharged so we shall fight to get that again – we would ideally like to have christmas in Acorn house instead of on the ward.

A special thanks goes out to the wonderful people who made these last few days so special:

Kim Walker, Helen Chapman, Mr Rose, Rob Walker, Yvonne Chalk, Jemma Aldridge, Josh Walker, Kim Mower, Cheryl Feltner and friends and The lady who made the brilliant cake ( I will find out her name)

If I have forgotten anyone, please please let me know. I am a firm believer in credit where credits due but my head is stuffed with so  much stuff at the moment.

Thank you all so so much xxxx